Intellectual Disabilities
http://hdl.handle.net/20.500.12904/10472
2024-03-29T12:11:41Z
2024-03-29T12:11:41Z
What are the views of adults with an intellectual disability (AWID), carers and healthcare professionals on a community falls management programme for AWID: A qualitative interview study in the UK
Kilby, Alice
Hodgson, Stuart
http://hdl.handle.net/20.500.12904/18328
2024-03-12T01:57:29Z
2024-01-01T00:00:00Z
What are the views of adults with an intellectual disability (AWID), carers and healthcare professionals on a community falls management programme for AWID: A qualitative interview study in the UK
Kilby, Alice; Hodgson, Stuart
OBJECTIVES: The aim of this study was to refine a draft of the ACTiON FALLS LD programme based on the views of adults with an intellectual disability (AWID), carers and healthcare professionals (HCPs). DESIGN, SETTING AND PARTICIPANTS: The semistructured interview study included HCP as well as AWID and carers supporting AWID living in the community. Community settings included sheltered living, supported living, AWID living at home with family carers or independently. The interview study explored the first draft of the ACTiON FALLS LD programme as well as the wider falls management for AWID. Interviews with AWID were developed to include a range of approaches (eg, case studies, pictures) to support inclusive participation. Individual interviews were digitally recorded and transcribed. Researcher notes were used during interviews with AWID. All data were analysed using the principles of framework analysis. RESULT(S): 14 HCP, 8 carers and 13 AWID took part in the interview process. Five key themes were identified: programme components, programme design, programme approach, who would use the programme and programme delivery. CONCLUSION(S): The views of AWID, HCP and carers showed the need to consider the impact of risk perception, anxiety and fear of falling in the adaption of the ACTiON FALLS programme. The programme needs to be accessible and support the inclusion of AWID in managing falls and ultimately fulfil the requirement for a proactive and educational tool by all. Copyright © Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.
© Author(s) (or their
employer(s)) 2024. Re-use
permitted under CC BY-NC. No
commercial re-use. See rights
and permissions. Published by
BMJ. This is an open access article distributed in accordance with the
Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which
permits others to distribute, remix, adapt, build upon this work non-commercially,
and license their derivative works on different terms, provided the original work is
properly cited, appropriate credit is given, any changes made indicated, and the use
is non-commercial. See: http://creativecommons.org/licenses/by-nc/4.0/.
2024-01-01T00:00:00Z
Comparing the number and length of primary care consultations in people with and without intellectual disabilities and health needs: observational cohort study using electronic health records
Kiani, Reza
http://hdl.handle.net/20.500.12904/16143
2023-02-16T10:01:48Z
2022-01-01T00:00:00Z
Comparing the number and length of primary care consultations in people with and without intellectual disabilities and health needs: observational cohort study using electronic health records
Kiani, Reza
BACKGROUND: In the United Kingdom, 15-min appointments with the general practitioner (GP) are recommended for people with complex health conditions, including intellectual disabilities and health needs, but we do not know whether this happens. AIMS: We compared number and length of primary care consultations (GP, nurse, other allied health, other) for people with and without intellectual disabilities and health needs. METHODS: Linked primary care data from the Clinical Practice Research Datalink (CPRD) in England were used to investigate face-to-face and telephone primary care consultations in 2017-2019. Health needs investigated were: epilepsy; incontinence; severe visual/hearing impairments; severe mobility difficulties; cerebral palsy; and percutaneous endoscopic gastrostomy feeding. Age and gender-standardized consultation rates per year (Poisson), duration of consultations, and the proportion of "long consultations" (≥15 min) were reported. RESULTS: People with intellectual disabilities (n = 7,794) had 1.9 times as many GP consultations per year as those without (n = 176,807; consultation rate ratio = 1.87 [95% confidence interval 1.86-1.89]). Consultation rates with nurses and allied healthcare professionals were also twice as high. Mean GP consultation time was 9-10 min regardless of intellectual disability/health need status. Long GP consultations were less common in people with intellectual disabilities (18.2% [17.8-18.7] vs. 20.9% [20.8-21.0]). Long consultations with practice nurses were more common in people with health needs, particularly severe visual loss. CONCLUSIONS: People with intellectual disabilities and/or health needs tend to have more, rather than longer, GP consultations compared with the rest of the population. We recommend further investigation into the role of practice nurses to support people with intellectual disabilities and health needs.
2022-01-01T00:00:00Z
Innovative interventions to reduce the stigma attached to intellectual disabilities: A narrative review
Hankir, Ahmed
http://hdl.handle.net/20.500.12904/16039
2022-12-01T12:24:32Z
2022-01-01T00:00:00Z
Innovative interventions to reduce the stigma attached to intellectual disabilities: A narrative review
Hankir, Ahmed
The stigma attached to intellectual disabilities (ID) can have profoundly adverse effects on the lives of people who suffer from these conditions. Stigma is also a major barrier to accessing specialist services and consequently many people with ID continue to suffer in silence. A confidential inquiry into the premature deaths of people with ID in England and Wales revealed the median age at death of individuals with this condition was 13 years (for males) to 20 years (for females) younger than the median age at death of the general population. It has been posited that stigma is a factor that contributes to the mortality gap between those with ID and those who don't have this condition. The COVID-19 pandemic has created new challenges for people with ID and has further fortified the barriers to specialist services. To reduce stigma, improve the quality of healthcare that is provided to people with this condition and to break down the barriers to specialist services, we must pioneer innovative interventions that leverage the power of technology and 'virtual' contact with people who live with these conditions.
2022-01-01T00:00:00Z
Asking parents/carers of young children with Down syndrome about specific eating behaviours and feeding practices could lead to more effective tailored support for feeding problems
Wood, Sian
http://hdl.handle.net/20.500.12904/15684
2023-10-06T08:44:51Z
2022-01-01T00:00:00Z
Asking parents/carers of young children with Down syndrome about specific eating behaviours and feeding practices could lead to more effective tailored support for feeding problems
Wood, Sian
Commentary on: Rogers SL, Smith B, Mengoni SE. Relationships between feeding problems, eating behaviours and parental feeding practices in children with Down syndrome: A cross‐sectional study. J Appl Res Intellect Disabil. 2022;35(2):596–606. Commentary: Feeding problems have a significant physical, functional and emotional impact on children with DS and their parents/carers,1 2 and are therefore an important area of study. This paper adds to existing evidence highlighting the greater incidence of feeding difficulties children with DS experience1 6 by offering comparisons to TD children. The study identifies greater food avoidance traits as a risk factor for feeding problems and offers suggestive evidence that for children with DS a shorter duration of receiving breast milk may be indicative of later feeding problems, highlighting the need for further research into this area. The findings act as a reminder to healthcare professionals to explore early eating behaviours and parental feeding practices in detail to identify specific areas for support. There is however a lack of depth to the study implications discussion. Consideration of factors such as feeding skills, the impact of dysphagia, the role of professionals with expertise in feeding/dysphagia management and the impact of children with DS’s communication differences on parental feeding practices could have offered greater clinical utility. The authors acknowledge the limitations of the sample size and large age range reducing generalisability and the cross-sectional nature of their study limiting the ability to address causality. There are few strong clinical implications nonetheless; this paper offers further insights to professionals working with parents/carers striving to meet the eating and drinking needs of children with DS.
2022-01-01T00:00:00Z