Mental Health and Behavioural Conditions: General and Other
http://hdl.handle.net/20.500.12904/121
2024-03-28T23:58:00Z
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Perception and appropriation of a web-based recovery narratives intervention: Qualitative interview study
http://hdl.handle.net/20.500.12904/18431
Perception and appropriation of a web-based recovery narratives intervention: Qualitative interview study
Ali, Yasmin; Rennick-Egglestone, Stefan; Llewellyn-Beardsley, Joy; Ng, Fiona; Yeo, Caroline; Kotera, Yasuhiro; Slade, Mike
INTRODUCTION: Mental health recovery narratives are widely available to the public, and can benefit people affected by mental health problems. The NEON Intervention is a novel web-based digital health intervention providing access to the NEON Collection of recovery narratives. The NEON Intervention was found to be effective and cost-effective in the NEON-O Trial for people with nonpsychosis mental health problems (ISRCTN63197153), and has also been evaluated in the NEON Trial for people with psychosis experience (ISRCTN11152837). We aimed to document NEON Intervention experiences, through an integrated process evaluation. METHODS: Analysis of interviews with a purposive sample of intervention arm participants who had completed trial participation. RESULTS: We interviewed 34 NEON Trial and 20 NEON-O Trial participants (mean age 40.4 years). Some users accessed narratives through the NEON Intervention almost daily, whilst others used it infrequently or not at all. Motivations for trial participation included: exploring the NEON Intervention as an alternative or addition to existing mental health provision; searching for answers about mental health experiences; developing their practice as a mental health professional (for a subset who were mental health professionals); claiming payment vouchers. High users (10 + narrative accesses) described three forms of appropriation: distracting from difficult mental health experiences; providing an emotional boost; sustaining a sense of having a social support network. Most participants valued the scale of the NEON Collection (n = 659 narratives), but some found it overwhelming. Many felt they could describe the characteristics of a desired narrative that would benefit their mental health. Finding a narrative meeting their desires enhanced engagement, but not finding one reduced engagement. Narratives in the NEON Collection were perceived as authentic if they acknowledged the difficult reality of mental health experiences, appeared to describe real world experiences, and described mental health experiences similar to those of the participant. DISCUSSION: We present recommendations for digital health interventions incorporating collections of digital narratives: (1) make the scale and diversity of the collection visible; (2) provide delivery mechanisms that afford appropriation; (3) enable contributors to produce authentic narratives; (4) enable learning by healthcare professionals; (5) consider use to address loneliness.
© 2024 Ali, Rennick-Egglestone, Llewellyn Beardsley, Ng, Yeo, Franklin, Perez Vallejos,
Ben-Zeev, Kotera and Slade. This is an open access article distributed under the terms of
the Creative Commons Attribution License
(CC BY). The use, distribution or reproduction
in other forums is permitted, provided the
original author(s) and the copyright owner(s)
are credited and that the original publication in
this journal is cited, in accordance with
accepted academic practice. No use,
distribution or reproduction is permitted
which does not comply with these terms
2024-01-01T00:00:00Z
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Development of the UPSIDES global mental health training programme for peer support workers: Perspectives from stakeholders in low, middle and high-income countries
http://hdl.handle.net/20.500.12904/18427
Development of the UPSIDES global mental health training programme for peer support workers: Perspectives from stakeholders in low, middle and high-income countries
Repper, Julie; Slade, Mike
BACKGROUND: Peer support in mental health is a low-threshold intervention with increasing evidence for enhancing personal recovery and empowerment of persons living with severe mental health conditions. As peer support spreads globally, there is a growing need for peer support training programmes that work well in different contexts and cultures. This study evaluates the applicability and transferability of implementing a manualised multi-national training programme for mental health peer support workers called UPSIDES from the perspective of different local stakeholders in high-, middle-, and low-income countries. METHOD: Data from seven focus groups across six study sites in Africa (Tanzania, Uganda), Asia (India, Israel), and Europe (Germany 2 sites) with 44 participants (3 service users, 7 peer support workers, 25 mental health staff members, 6 clinical directors and 3 local community stakeholders) were thematically analysed. RESULTS: 397 codes were identified, which were thematically analysed. Five implementation enablers were identified: (i) Enhancing applicability through better guidance and clarity of training programme management, (ii) provision of sufficient time for training, (iii) addressing negative attitudes towards peer support workers by additional training of organisations and staff, (iv) inclusion of core components in the training manual such as communication skills, and (v) addressing cultural differences of society, mental health services and discrimination of mental health conditions. DISCUSSION: Participants in all focus groups discussed the implementation of the training and peer support intervention to a greater extent than the content of the training. This is in line with growing literature of difficulties in the implementation of peer support including difficulties in hiring peer support workers, lack of funding, and lack of role clarity. The results of this qualitative study with stakeholders from different mental health settings worldwide emphasises the need to further investigate the successful implementation of peer support training. All results have been incorporated into the manualisation of the UPSIDES peer support training.
© 2024 Nixdorf et al. This is an open
access article distributed under the terms of the
Creative Commons Attribution License, which
permits unrestricted use, distribution, and
reproduction in any medium, provided the original
author and source are credited
2024-01-01T00:00:00Z
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Waiting-list interventions for children and young people using child and adolescent mental health services: A systematic review
http://hdl.handle.net/20.500.12904/18337
Waiting-list interventions for children and young people using child and adolescent mental health services: A systematic review
Valentine, Althea Z.; Hall, Sophie S.; Hall, Charlotte L.
Question Children and young people experience delays in assessment and/or treatment within mental health services. The objective of this systematic review, funded by the Emerging Minds Network, was to explore the current evidence base for mental health waiting list interventions to support children and young people.Study selection and analysis A literature search was conducted in MEDLINE, PsycINFO, Web of Science and the Cochrane databases from 2000 to 2023 (last searched October 2023). Included studies described interventions to support children and young people and/or their family while on a waiting list for child and adolescent mental health services. Titles and abstracts were screened independently by two reviewers, data were extracted by one reviewer, confirmed by a second and a narrative synthesis was provided.Findings Eighteen studies including 1253 children and young people were identified. Studies described waiting list interventions for autism spectrum disorders, eating disorders, generic conditions, transgender health, anxiety/depression, self-harm and suicide and behavioural issues. Many interventions were multicomponent; 94% involved psychoeducation, other components included parental support, bibliotherapy and coaching. Duration of the interventions ranged from a single session to over a year; 66% involved face-to-face contact. All studies demonstrated benefits in terms of improved clinical outcomes and/or feasibility/acceptability. Evidence for service outcomes/efficiency was largely unexplored. Limitations of the underpinning research, such as sample size and low-quality papers, limit the findings.Conclusions There is limited research exploring waiting list interventions, however, the findings from small-scale studies are promising. Further research using robust study designs and real-world implementation studies are warranted.Data created during this research are openly available from the University of Nottingham data repository at https://doi.org/10.17639/nott.7375.
© Author(s) (or their
employer(s)) 2024. Re-use
permitted under CC BY.
Published by BMJ. This is an open access article distributed in accordance with the
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and indication of whether changes were made. See: https://creativecommons.org/
licenses/by/4.0/.
2024-01-01T00:00:00Z
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The transformative potential of citizen science for mental health
http://hdl.handle.net/20.500.12904/18336
The transformative potential of citizen science for mental health
Slade, Mike; Rennick-Egglestone, Stefan; Todowede, Olamide
Citizen science is an approach to knowledge production through public engagement in scientific research activities, whereby citizens actively contribute to science either with their intellectual effort, surrounding knowledge, or their tools and resources. The European Citizen Science Association identified ten defining principles, including having a genuine scientific outcome and citizens participating in multiple stages of the scientific process. Citizen science is well established in fields such as ecology, where it has enabled large-scale, continent-wide studies. Citizen science improves public understanding of science, and hence increases public engagement in the scientific process.
2024-01-01T00:00:00Z