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    Experiences of people with multiple sclerosis at work: Towards the understanding of the needs for a job retention vocational rehabilitation intervention

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    Author
    das Nair, Roshan
    Keyword
    Return to work
    Multiple sclerosis
    Vocational rehabilitation
    Employment
    Date
    2022
    
    Metadata
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    Publisher's URL
    https://content.iospress.com/articles/work/wor210012
    Abstract
    BACKGROUNDSupporting people with multiple sclerosis (MS) at work can be challenging due to the unpredictable nature and myriad of disease-related symptoms, and issues related to the work environment.OBJECTIVETo explore, amongst people with MS in employment, their experiences of and need for vocational rehabilitation (VR), and perceived barriers and facilitators to implementing VR.METHODSWe conducted 20 semi-structured interviews with people with MS, employers, and healthcare professionals. Interviews were audio-recorded, transcribed, and analysed using the framework method.RESULTSWe identified nine themes reflecting the main MS symptoms (e.g. cognition, fatigue), and environmental factors such as support provided at work (e.g. change of working hours) and workplace characteristics. Providing support tailored to the individual's needs and early intervention were seen as important attributes for the intervention. The barriers identified referred to lack of resources and confidentiality issues; however, having flexibility in the content and delivery of the intervention were seen as facilitators.CONCLUSIONThe impact of environmental factors (e.g. attitudes towards disability) on employment difficulties is equal to or greater than disease-related factors. Environmental changes in the attitudes of co-workers and workplace flexibility can enable people with MS to remain in work for longer.
    Citation
    De Dios Pérez, B., Radford, K. & das Nair, R. (2022). Experiences of people with multiple sclerosis at work: Towards the understanding of the needs for a job retention vocational rehabilitation intervention. Work, 72(1), pp. 303-313.
    Type
    Article
    URI
    http://hdl.handle.net/20.500.12904/15396
    Collections
    Neurological Conditions

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