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dc.contributor.authorBarwell, Julian
dc.contributor.authorVasudevan, Pradeep
dc.date.accessioned2022-06-16T15:29:39Z
dc.date.available2022-06-16T15:29:39Z
dc.date.issued2021-09
dc.identifier.citationWolstencroft, J., Hull, L., Warner, L., Akhtar, T. N., Mandy, W., IMAGINE-ID consortium, & Skuse, D. (2021). 'We have been in lockdown since he was born': a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UK. BMJ open, 11(9), e049386. https://doi.org/10.1136/bmjopen-2021-049386en_US
dc.identifier.urihttp://hdl.handle.net/20.500.12904/15614
dc.description.abstractObjectives: This study aimed to explore the experiences of parents caring for children with intellectual and developmental disabilities (IDD) during the UK national lockdown in spring 2020, resulting from the COVID-19 pandemic. Design: Participants were identified using opportunity sampling from the IMAGINE-ID national (UK) cohort and completed an online survey followed by a semistructured interview. Interviews were analysed using thematic analysis. Setting: Interviews were conducted over the telephone in July 2020 as the first UK lockdown was ending. Participants: 23 mothers of children with intellectual and developmental disabilities aged 5-15 years were recruited. Results: Themes reported by parents included: managing pre-existing challenges during a time of extreme change, having mixed emotions about the benefits and difficulties that arose during the lockdown and the need for appropriate, individualised support. Conclusions: Our findings confirm observations previously found in UK parents of children with IDD and provide new insights on the use of technology during the pandemic for schooling and healthcare, as well as the need for regular check-ins.
dc.description.urihttps://bmjopen.bmj.com/content/11/9/e049386en_US
dc.language.isoenen_US
dc.subjectCOVID-19en_US
dc.subjectintellectual disabilityen_US
dc.subjectmental healthen_US
dc.subjectpaediatricsen_US
dc.subjectpsychiatryen_US
dc.subjectcarersen_US
dc.title'We have been in lockdown since he was born': a mixed methods exploration of the experiences of families caring for children with intellectual disability during the COVID-19 pandemic in the UKen_US
dc.typeArticleen_US
rioxxterms.funderDefault funderen_US
rioxxterms.identifier.projectDefault projecten_US
rioxxterms.versionNAen_US
rioxxterms.versionofrecord10.1136/bmjopen-2021-049386en_US
rioxxterms.typeJournal Article/Reviewen_US
refterms.panelUnspecifieden_US
html.description.abstractObjectives: This study aimed to explore the experiences of parents caring for children with intellectual and developmental disabilities (IDD) during the UK national lockdown in spring 2020, resulting from the COVID-19 pandemic. Design: Participants were identified using opportunity sampling from the IMAGINE-ID national (UK) cohort and completed an online survey followed by a semistructured interview. Interviews were analysed using thematic analysis. Setting: Interviews were conducted over the telephone in July 2020 as the first UK lockdown was ending. Participants: 23 mothers of children with intellectual and developmental disabilities aged 5-15 years were recruited. Results: Themes reported by parents included: managing pre-existing challenges during a time of extreme change, having mixed emotions about the benefits and difficulties that arose during the lockdown and the need for appropriate, individualised support. Conclusions: Our findings confirm observations previously found in UK parents of children with IDD and provide new insights on the use of technology during the pandemic for schooling and healthcare, as well as the need for regular check-ins.en_US
rioxxterms.funder.project94a427429a5bcfef7dd04c33360d80cden_US


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