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    How do stroke survivors and their caregivers manage post-stroke fatigue? A qualitative study

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    Author
    das Nair, Roshan
    Keyword
    Stroke
    Fatigue
    Caregivers
    Date
    2022
    
    Metadata
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    DOI
    10.1177/02692155221107738
    Publisher's URL
    https://journals.sagepub.com/doi/10.1177/02692155221107738
    Abstract
    OBJECTIVESThe primary objective was to gain insight into the lived experiences of using day-to-day strategies to manage post-stroke fatigue.DESIGNQualitative, descriptive study.SETTINGCommunity telephone interviews.PARTICIPANTSA purposive sample of 20 stroke survivors with current, or previous, post-stroke fatigue, and 8 caregivers, who provided informal care or support, were recruited.MAIN MEASURESSemi-structured telephone interviews were undertaken. Data were analysed using a framework approach.RESULTSMost participants had found their own ways of coping and their personal strategies included acceptance of having fatigue; 'pacing' (spreading activities out and interspersing with rest periods); keeping a diary in order to plan activities and to identify 'trigger' activities which induced fatigue; talking to (and educating) others about having fatigue; using relaxation; and accessing professional advice and support. The burden placed on caregivers was considerable and they often had to oversee the post-stroke fatigue management strategies used.CONCLUSIONSPost-stroke fatigue is managed in different ways and there was not one particular strategy that seemed effective for everyone. Most people in our study had had to devise their own ways of coping practically. Given the scale of this problem, which profoundly impacts the lives of both stroke survivors and caregivers, the management of post-stroke fatigue merits more attention and evaluation. However, this must be directly informed by those with lived experience.
    Citation
    Ablewhite, J., Nouri, F., Whisker, A., Thomas, S., Jones, F., das Nair, R., Condon, L., Jones, A., Sprigg, N. & Drummond, A. (2022). How do stroke survivors and their caregivers manage post-stroke fatigue? A qualitative study. Clinical Rehabilitation, 36(10), pp. 1400-1410.
    Type
    Article
    URI
    http://hdl.handle.net/20.500.12904/15689
    Collections
    Neurological Conditions

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