Involving carers in therapy for adults with intellectual disabilities : a systematic review of client, carer and therapist perspectives

Abstract

BACKGROUND: Adaptations are frequently reported when delivering therapy to people with an intellectual disability, including the involvement of carers. This review aimed to understand the experience of carer involvement from the perspective of the person, therapist and caregiver. METHODS: A systematic search of six databases and of reference lists was conducted. The quality of the included studies was assessed using an adapted version of the Critical Appraisal Skills Programme qualitative checklist. Data was synthesised using meta-ethnography. RESULTS: Sixteen studies were included but their quality varied. Five third-order constructs were identified: safety, therapeutic process, relationships, personal impact on carer and improving the experience. CONCLUSION: Findings suggest that carer involvement can be a positive experience and aid the therapy process. However, this depended on several factors including carer motivation and consistency. Confidentiality issues were highlighted. Limitations of studies included poor reporting on participant demographics and small samples. Future research and clinical implications are suggested.