Show simple item record

dc.contributor.authorRennick-Egglestone, Stefan
dc.contributor.authorLlewellyn-Beardsley, Joy
dc.contributor.authorSlade, Mike
dc.date.accessioned2019-10-17T14:34:47Z
dc.date.available2019-10-17T14:34:47Z
dc.date.issued2019
dc.identifier.citationMcGranahan, R., Rennick-Egglestone, S., Ramsay, A., Llewellyn-Beardsley, J., Bradstreet, S., Callard, F., Priebe, S. & Slade, M. (2019). Curation of mental health recovery narrative collections: Systematic review and qualitative synthesis. JMIR Mental Health, 6 (10), pp.e14233.en
dc.identifier.other10.2196/14233
dc.identifier.urihttp://hdl.handle.net/20.500.12904/9211
dc.description©Rose McGranahan, Stefan Rennick-Egglestone, Amy Ramsay, Joy Llewellyn-Beardsley, Simon Bradstreet, Felicity Callard, Stefan Priebe, Mike Slade. Originally published in JMIR Mental Health (http://mental.jmir.org), 07.10.2019 This is an open-access article distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Mental Health, is properly cited. The complete bibliographic information, a link to the original publication on http://mental.jmir.org/, as well as this copyright and license information must be included.
dc.description.abstractBACKGROUNDMental health recovery narratives are first-person lived experience accounts of recovery from mental health problems, which refer to events or actions over a period. They are readily available either individually or in collections of recovery narratives published in books, health service booklets, or on the Web. Collections of recovery narratives have been used in a range of mental health interventions, and organizations or individuals who curate collections can therefore influence how mental health problems are seen and understood. No systematic review has been conducted of research into curatorial decision making.OBJECTIVEThis study aimed to produce a conceptual framework identifying and categorizing decisions made in the curation of mental health recovery narrative collections.METHODSA conceptual framework was produced through a systematic review and qualitative evidence synthesis. Research articles were identified through searching bibliographic databases (n=13), indexes of specific journals (n=3), and gray literature repositories (n=4). Informal documents presenting knowledge about curation were identified from editorial chapters of electronically available books (n=50), public documents provided by Web-based collections (n=50), and prefaces of health service booklets identified through expert consultation (n=3). Narrative summaries of included research articles were produced. A qualitative evidence synthesis was conducted on all included documents through an inductive thematic analysis. Subgroup analyses were conducted to identify differences in curatorial concerns between Web-based and printed collections.RESULTSA total of 5410 documents were screened, and 23 documents were included. These comprised 1 research publication and 22 informal documents. Moreover, 9 higher level themes were identified, which considered: the intended purpose and audience of the collection; how to support safety of narrators, recipients, and third parties; the processes of collecting, selecting, organizing, and presenting recovery narratives; ethical and legal issues around collections; and the societal positioning of the collection. Web-based collections placed more emphasis on providing benefits for narrators and providing safety for recipients. Printed collections placed more emphasis on the ordering of narrative within printed material and the political context.CONCLUSIONSOnly 1 research article was identified despite extensive searches, and hence this review has revealed a lack of peer-reviewed empirical research regarding the curation of recovery narrative collections. The conceptual framework can be used as a preliminary version of reporting guidelines for use when reporting on health care interventions that make use of narrative collections. It provides a theory base to inform the development of new narrative collections for use in complex mental health interventions. Collections can serve as a mechanism for supporting collective rather than individual discourses around mental health.en
dc.description.urihttps://mental.jmir.org/2019/10/e14233/en
dc.formatFull text uploaded
dc.subjectMental health recoveryen
dc.subjectData collectionen
dc.subjectCommunicationen
dc.titleCuration of mental health recovery narrative collections: Systematic review and qualitative synthesisen
dc.typeArticleen
refterms.dateFOA2021-06-14T10:38:34Z


Files in this item

Thumbnail
Name:
McGranahan 2019 e014233.pdf
Size:
175.9Kb
Format:
PDF

This item appears in the following Collection(s)

Show simple item record